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  1. 1

    WHO guidelines on ethical issues in public health surveillance.

    World Health Organization [WHO]

    Geneva, Switzerland, WHO, 2017. 56 p.

    The WHO Guidelines on Ethical Issues in Public Health Surveillance is the first international framework of its kind, it fills an important gap. The goal of the guideline development project was to help policymakers and practitioners navigate the ethical issues presented by public health surveillance. This document outlines 17 ethical guidelines that can assist everyone involved in public health surveillance, including officials in government agencies, health workers, NGOs and the private sector. Surveillance, when conducted ethically, is the foundation for programs to promote human well-being at the population level. It can contribute to reducing inequalities: pockets of suffering that are unfair, unjust and preventable cannot be addressed if they are not first made visible. But surveillance is not without risks for participants and sometimes poses ethical dilemmas. Issues about privacy, autonomy, equity, and the common good need to be considered and balanced, and knowing how to do so can be challenging in practice.
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  2. 2

    Keys to youth-friendly services: Ensuring confidentiality.

    International Planned Parenthood Federation [IPPF]

    London, United Kingdom, IPPF, 2011 Mar. [8] p.

    Confidentiality is crucial in the provision of youth friendly services. Privacy and confidentiality are distinct concepts. Confidentiality ensures privacy. The promotion of young people's sexual and reproductive health can only be achieved through providing confidential services that encourage them to seek preventative care and counselling.
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  3. 3

    Legal frameworks for eHealth. Based on the findings of the second global survey on eHealth.

    Wilson P

    Geneva, Switzerland, World Health Organization [WHO], 2012. [89] p. (Global Observatory for eHealth Series Vol. 5)

    Given that privacy of the doctor-patient relationship is at the heart of good health care, and that the electronic health record (EHR) is at the heart of good eHealth practice, the question arises: Is privacy legislation at the heart of the EHR? The second global survey on eHealth conducted by the Global Observatory for eHealth (GOe) set out to answer that question by investigating the extent to which the legal frameworks in the Member States of the World Health Organization (WHO) address the need to protect patient privacy in EHRs as health care systems move towards leveraging the power of EHRs to deliver safer, more efficient, and more accessible health care. (Excerpt)
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  4. 4

    Putting women first: ethical and safety recommendations for research on domestic violence against women.

    World Health Organization [WHO]. Department of Gender and Women’s Health

    Geneva, Switzerland, WHO, Department of Gender and Women's Health, 2001. 31 p. (WHO/FCH/GWH/01.1)

    In order to guide future research in this area, the World Health Organization has developed the following recommendations regarding the ethical conduct of domestic violence research. These build on the collective experience of the International Research Network on Violence Against Women (IRNVAW). They have been reviewed and approved by the WHO Steering Committee for the Multi-Country Study on Women’s Health and Domestic Violence Against Women, and also reviewed by key members of the Scientific and Ethical Review Group (SERG) of the Special Programme on Research and Research Training on Human Reproduction (HRP). The recommendations are in addition to those outlined in the CIOMS International Guidelines for Ethical Review of Epidemiological Studies (1991). These recommendations are designed for use both by anyone intending to do research on domestic violence against women (such as investigators, project co-ordinators and others implementing such research), and also by those initiating or reviewing such research (such as donors, research ethical committees etc.). The guidelines focus on the specific ethical and safety issues associated with planning and conducting research on this topic. They do not intend to give general guidance or recommendations on the planning, methodology, and logistics of research on domestic violence against women, or issues associated with the ethical conduct of research in general. (The latter is addressed by the CIOMS Guidelines referred to above). These recommendations emerged from discussion of those prepared for the WHO Multi-country Study on Women’s Health and Domestic Violence Against Women. They focus in particular on the ethical and safety considerations associated with conducting population-based surveys on domestic violence against women. However, many of the principles identified are also applicable to other forms of quantitative and qualitative research on this issue. The recommendations were not written for research on other forms of violence against women, such as violence in conflict situations, or trafficking of women. Whilst it is likely that some aspects of the guidelines will be applicable in those situations, there may also be some important differences. (excerpt)
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